My youngest sister, Ellie, is 15 years old and was diagnosed with cystic fibrosis when she was born prematurely. I was 4 at the time, so most of my memories are woven with cystic fibrosis and the CF ...
A blockage in the small intestine, called meconium ileus, was the medical complication that led to my cystic fibrosis diagnosis at birth. For years, I struggled with failure to thrive due to ...
Small-molecule CFTR modulators that directly target the mutant protein are powerful therapies that benefit the majority of people with cystic fibrosis. However, there is still a significant unmet need ...
The Northern Ohio Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get ...
The South Texas Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get involved.
Cystic fibrosis is a genetic disease that causes a buildup of thick, sticky mucus in the lungs. CF causes ongoing lung infections and makes it hard to breathe over time. CF also affects other parts of ...
Quittner AL, Abbott J, Georgiopoulos AM, et al. International Committee on Mental Health in Cystic Fibrosis: Cystic Fibrosis Foundation and European Cystic Fibrosis Society consensus statements for ...
For most of my life, I measured time differently than other people. While many children spent their days dreaming about what they wanted to be when they grew up, I spent mine learning how to manage ...
I have two children: my son, Elijah, and my daughter, Elara, who has cystic fibrosis. Some afternoons, my son is excitedly telling me about his day at school. I hear every word he's saying. I ask ...
Managing your daily life so that you don't miss your treatments while also taking in the right amount of calories to maintain a healthy weight is not easy. You're not expected to do it alone. Your ...
Maddie lives in Minneapolis with her boyfriend, Kevin, and dog, Nino. She received a bachelor's degree in both biology and Spanish from the University of Wisconsin-Madison and is currently working on ...
Do you think individuals with cystic fibrosis can thrive in school, even if they miss more than 36 days out of a 180-day school year? The answer is yes, but it requires dedication and teamwork from ...
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