ST. LOUIS — The 7th Annual Dance for Dravet is just around the corner, taking place on September 26th at the Third Degree Glass Factory. Hosted by the Brennan family in honor of 8-year-old Anna Odlaug ...

Seven-year-old Cael Hill of Roaring Brook just started kindergarten this year. "He is very into dinosaurs and Spider-Man. Your typical little boy in terms of his interests, but he has a lot of ...

Appleton homeowner Kim Jones uses elaborate Halloween decorations to raise money for St. Jude and Dravet Syndrome Foundation ...

After raising $52,000 with a 5K last year to fund research into their son’s rare seizure disorder, Matthew and Reagan Hill hope for similar success at “Cael’s Climb” at McDade Park on Sunday. Cael ...

*Jenece Bond, founder of the Taylen Lauren Horton Foundation, a non-profit, is on a mission to change lives and raise awareness for Dravet syndrome. Like most people, you’ve probably never heard of ...

SCRANTON, Pa. — A 5-year-old boy from Lackawanna County is living with a rare form of epilepsy and his parents are ready to find a cure. Because of how rare it is, there is very little awareness, and ...

At just four months old, Freya Barragan’s diagnosis of Dravet syndrome thrust her family into a roller coaster of adaptation and constant learning. Freya, now two years old, has remained the sweetest ...

PERKASIE, Pa. (CBS) -- This holiday season is extra special for a Bucks County family learning to live with a rare disease. New research is allowing the family to enjoy the holiday with their little ...

Most parents worry about scraped knees, tumbles on the playground or gym class injuries. But for the Raia and Tisdale families, their everyday fears are life-threatening: a seizure that can strike ...