The day Jaxson DeLeon got his Duchenne Muscular Dystrophy diagnosis, his mom didn’t let herself cry. “If you cry, that’s it. You’re not going to stop crying,” Carmen Ramirez remembers thinking two ...

WEEKEND, PALM BEACH COUNTY FIRE RESCUE WILL CONTINUE THEIR ANNUAL BOOT DRIVE FOR CHILDREN AND ADULTS WITH MUSCULAR DYSTROPHY. THIS TRADITION GOING ON FOR MORE THAN 70 YEARS. HERE TO TELL US ABOUT THIS ...

WASHINGTON, Jan. 17, 2024 /PRNewswire/ -- Parent Project Muscular Dystrophy (PPMD), a nonprofit organization leading the fight to end Duchenne muscular dystrophy (Duchenne), will host its fifth ...

Milestone event brings together record-breaking 1,300 plus families, physicians, researchers, caregivers, industry partners, and those living with Duchenne and Becker in person and virtually to ...

GAINESVILLE — A biotechnology company is paying $2 million to the University of Florida Powell Gene Therapy Center for research toward the treatment of a deadly form of muscular dystrophy. The ...

Gene therapy may have the potential to cure Duchenne muscular dystrophy, but early results from clinical trials have not been as promising as researchers hoped. Research is ongoing. Duchenne muscular ...

LANCASTER, Pa., Jan. 20, 2025 /PRNewswire/ -- On July 18, 2025, The Speak Foundation will host the fourth International Limb Girdle Muscular Dystrophy (LGMD) Conference at the J.W. Marriott Orlando, ...

More than 30 types of muscular dystrophy have been identified. They all cause problems with movement due to muscle protein defects caused by genetic mutations. Muscular dystrophy is a group of ...