Traveling has been a lifelong passion, and I won’t let cystic fibrosis keep me grounded. Here are my seven rules for traveling with CF.

Throughout my life, I experienced small, unexplained health issues that slowly accumulated. It wasn’t until I endured years of chronic pancreatitis that I finally received a diagnosis at 58 years old: ...

Living with cystic fibrosis used to feel discouraging, but I’ve recently learned that these challenges can be my greatest motivation to advocate for the CF community.

My story was featured in the third plenary at the North American Cystic Fibrosis Foundation, which covered the challenges of health disparities in CF care and research, including access issues.

I wasn’t supposed to make it this far. I was born six weeks early, to parents who weren’t ready. They fought constantly, partied hard, and eventually split up. My sister went with my dad, and I stayed ...

BETHESDA, Md. (July 16, 2025) – Today, the Cystic Fibrosis Foundation announced an additional investment of up to $24 million in Prime Medicine to continue the development of a gene editing therapy ...

When I tell people I’m training for a full Ironman competition, their reactions range from raised eyebrows to outright disbelief. It involves swimming 2.4 miles, biking 112 miles, then running a full ...

For more than 25 years, people with cystic fibrosis and their loved ones have helped raise awareness, support, and understanding of CF in the United States through national recognition events. Today, ...

Our family has lived with the constant anxiety of managing cystic fibrosis since our daughter’s birth — which made it all the more devastating when she had to stop taking Trikafta due to its impact on ...

On behalf of the 272 undersigned organizations committed to the health of our nation’s mothers, infants, children, and families, we express our deep concern over the Administration’s recent decision ...

BETHESDA, Md. — The Cystic Fibrosis Foundation issued the following statement in response to the recent announcement by the National Institutes of Health (NIH) that it will set the reimbursement rate ...

The Cystic Fibrosis Foundation is funding the development of a gene editing therapy that is designed to use ReCode’s tissue-specific delivery vehicle to transport gene editing cargo to the lung cells ...