74 reactions · 48 shares | Rett syndrome may make those we love rare, but it’s their personalities, likes, and interests that make them extraordinary. Meet some of these individuals, and help us improve their tomorrow. Make a gift today in honor of #RareDiseaseDay. | International Rett Syndrome Foundation | Facebook
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74 reactions · 48 shares | Rett syndrome may make those we love rare, but it’s their personalities, likes, and interests that make them extraordinary. Meet some of these individuals,
International Rett Syndrome Foundation. . Rett syndrome may make those we love rare, but it’s their personalities, likes, and interests that make them extraordinary. Meet some of these individuals, and help us improve their tomorrow. Make a gift today in honor of #RareDiseaseDay.
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6K views · 84 reactions | October is Rett Syndrome awareness month. Aubrey is a beautiful 8 year old living with Rett Syndrome. Watch the video to see her sweet face light up at the sight of her new Freedom Concepts bike and learn a little bit about Rett Syndrome. . #mclindonfamilyfoundation #mff #thesebikeschangelives #adaptivebikes #propelyourstory #challenge #change #revolution #strength #confidence #inclusion | McLindon Family Foundation | Facebook
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81 reactions · 17 shares | Watch this video to learn about our myRett Trial Finder and how we’re helping connect families to research opportunities. Together we can create a world without Rett. Learn more: https://www.rettsyndrome.org/rett-research-ready/ | International Rett Syndrome Foundation | Facebook
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81 reactions · 17 shares | Watch this video to learn about our myRett Trial Finder and how we’re helping connect families to research opportunities. Together we can create a world without Rett. Learn more: https://www.rettsyndrome.org/rett-research-ready/ | International Rett Syndrome Foundation | Facebook
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Rett research is at a turning point. With an FDA-approved treatment, two gene therapy trials underway, and more approaches in the pipeline, progress is accelerating like never before. In this video, CEO Laura Hameed shares how IRSF is meeting the moment by advancing science, empowering families, and building the partnerships needed to turn possibility into reality. Watch now and hear why she believes hope for families living with #rettsyndrome has never been stronger. | International Rett Syndro
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