WHAT IS LOEYS-DIETZ SYNDROME? | TheTole Acupuncture #datotole #thetoleacupuncture
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WHAT IS LOEYS-DIETZ SYNDROME? | TheTole Acupuncture #datotole #thetoleacupuncture
12 views2 months ago
YouTubehong tole leong
Understanding the Cost of Healthcare: A Personal Journey with Loeys-Dietz Syndrome
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Understanding the Cost of Healthcare: A Personal Journey with Loeys-Dietz Syndrome
341.8K viewsMay 3, 2024
TikTokbwblondon
Share your real daily life with Loeys-Dietz syndrome. #loeysdietzrealreels
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Share your real daily life with Loeys-Dietz syndrome. #loeysdietzrealreels
641 viewsMay 24, 2024
YouTubeThe Marfan Foundation
Ashley's real is the amazing story of how her college class saved her life -- and helped her ultimately get diagnosed with LDS. What's your real? Tell us: https://ow.ly/oULF50S7Srp #loeysdietzrealreels #loeysdietzawarenessmonth #loeysdietzawareness #loeysdietzsyndrome #loeysdietz | Loeys-Dietz Syndrome Foundation
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Ashley's real is the amazing story of how her college class saved her life -- and helped her ultimately get diagnosed with LDS. What's your real? Tell us: https://ow.ly/oULF50S7Srp #loeysdietzrealreels #loeysdietzawarenessmonth #loeysdietzawareness #loeysdietzsyndrome #loeysdietz | Loeys-Dietz Syndrome Foundation
892 viewsJun 4, 2024
FacebookLoeys-Dietz Syndrome Foundation
Kisah Celia, Perempuan yang Tidak Makan Selama 4 Tahun akibat Sindrom Langka
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Kisah Celia, Perempuan yang Tidak Makan Selama 4 Tahun akibat Sindrom Langka
289 viewsMay 8, 2024
YouTubeKompas.com
Aortic Disease Awareness Week (Part 2)
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Aortic Disease Awareness Week (Part 2)
110 viewsSep 25, 2020
YouTubeThe Marfan Foundation
Loeys-Dietz Syndrome: Key Facial Characteristics #shorts
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Loeys-Dietz Syndrome: Key Facial Characteristics #shorts
88 views5 months ago
YouTubeSalud con Armonía
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Rare genetic disease affects twins over 2 meters tall
831 viewsMay 19, 2025
YouTubeVinícius Di Nardo
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We're commemorating 45 years all through 2026. We're proud that the Foundation family has grown to include so many people with a common goal: making life better and longer for everyone who lives with genetic aortic and vascular conditions. Special thanks to volunteer Grace M. for creating this beautiful video. #KnowConnectThrive45 #Marfan #LoeysDietz #VEDS #SticklerSyndrome | Loeys-Dietz Syndrome Foundation
662 views7 months ago
FacebookLoeys-Dietz Syndrome Foundation
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Síndrome de Loeys-Dietz: Histórias de Superação
42.4K viewsAug 8, 2025
TikTokonlinegospel
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Confirmation bias can make almost any diagnosis seem like it fits.
418 views1 month ago
YouTubeBendy Bodies
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That Split in Your Throat? Let’s Talk!!! #tiktok
341 views9 months ago
YouTubeCurious Cove
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Family reunion in Charlotte: inclusive Topgolf memories with John
37K views1 month ago
TikTokmybrotherjohndpandco
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Megan's real is both the beauty and stress that comes with raising a child who lives with Loeys-Dietz syndrome. What's yours? Help save and improve lives when you share your real reel! https://vocalvideo.com/c/loeys-dietz-real-reels #loeysdietzrealreels #LoeysDietz #loeysdietzsyndrome #loeysdietzawarenessmonth | Loeys-Dietz Syndrome Foundation
7.2K viewsJun 2, 2024
FacebookLoeys-Dietz Syndrome Foundation
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Why CPG Volume Growth Is Slowing
176 views4 months ago
YouTubeCircana
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COP30 : "On a besoin du gaz pour la décarbonation"
6.1K views9 months ago
YouTubeFrance Inter
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Your last chance to make a tax-deductible gift in 2025 and be matched dollar for dollar ends in less than 8 hours. Don't wait: ✅ marfan.org/impact Every share helps! Every dollar helps! We are so grateful. Thank you for helping to empower and strengthen our community! | Loeys-Dietz Syndrome Foundation
57 views7 months ago
FacebookLoeys-Dietz Syndrome Foundation
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President & CEO of the Marfan Foundation and its divisions, Michael Weamer, shares gratitude for every member of the Foundation family as we head toward closing out 2025. #Gratitude #Marfan #LoeysDietz #VEDS #Stickler Transcript: So as the clock winds down on 2025, and we look forward to 2026, which also coincides with the 45th anniversary of the Foundation and the 40th year of funding research, it's a wonderful opportunity to say thank you. Thank you to our community, which is at the heart and
183 views7 months ago
FacebookLoeys-Dietz Syndrome Foundation
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We're just under $8K away from this year's Giving Tuesday goal. Here's how you can help right now: 💝Make your own gift of any amount at loeysdietz.org/givingtuesday 💙Ask 3 important people in your life to join you and give now 📨Share the giving link on social, in email, via text with your whole network Let's get there, together! | Loeys-Dietz Syndrome Foundation
238 views8 months ago
FacebookLoeys-Dietz Syndrome Foundation
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We pause today, during Loeys-Dietz Awareness Month, to lovingly remember those who have passed away. If you’d like to share a memory, an image, a video of a loved one, please feel free to do so in comments. Our hearts are with all those experiencing grief. | Loeys-Dietz Syndrome Foundation
1.5K viewsJun 26, 2024
FacebookLoeys-Dietz Syndrome Foundation
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